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Lord Herbert-U/D 1st August

Hoping he’s feeling much better today.
I don’t know if this has any relevance, but one of my colleagues has a teenage son who has epilepsy. He had a massive seizure (much worse than usual) the same day as Lord H. She said she knew that he was going to have one because of the change in weather. She says that getting out of a hot car and into the cooler air can trigger them. I’m just wondering if there are any triggers for him, other than changes in his meds. Love and nose rubs for you all x

I think the weather may well have played a part in it all. Not so much the heat, but the oppressive atmosphere and very poor air quality. During his worst seizure I really did not think he'd survive. He bit right through his tongue too :cry:

Today he is coping OK. No more full seizures, but he's still having a few 'absences'. His GI tract symptoms are considerably better. Not quite 100% yet, but almost 'normal' for him.

It's the not knowing what the actual cause of his problems is that makes it all worse. The Specialist said it's basically that his autonomic nervous system is 'wired up all wrong'.

I could continue to spend £1000s on diagnostics but both my Vet and the Specialist feel that doing so would probably not provide any more treatment options than those we are already using.

As long as Lord H has quality of life, is not in pain and is happy within himself then I think we'll just continue to take things one day at a time. I know some people will not agree with my decision and think I should be taking him to yet more 'Specialists'. But I feel my decision is right for Lord H.
 
I think the weather may well have played a part in it all. Not so much the heat, but the oppressive atmosphere and very poor air quality. During his worst seizure I really did not think he'd survive. He bit right through his tongue too :cry:

Today he is coping OK. No more full seizures, but he's still having a few 'absences'. His GI tract symptoms are considerably better. Not quite 100% yet, but almost 'normal' for him.

It's the not knowing what the actual cause of his problems is that makes it all worse. The Specialist said it's basically that his autonomic nervous system is 'wired up all wrong'.

I could continue to spend £1000s on diagnostics but both my Vet and the Specialist feel that doing so would probably not provide any more treatment options than those we are already using.

As long as Lord H has quality of life, is not in pain and is happy within himself then I think we'll just continue to take things one day at a time. I know some people will not agree with my decision and think I should be taking him to yet more 'Specialists'. But I feel my decision is right for Lord H.
I may be way off here, and this may be pointless, but you could get one of those air purifier things with a hepa filter? If he lives indoors? Idk if it would help, but it keeps the air quality good - we have a Dyson fan with a purifier in and honestly it's helped me so much with various things,but you can just get a purifier on amazon don't think they're that expensive.. This may not be helpful to him at all it's just you mentioned bad air quality.

I'm glad he's feeling better :) x



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I’m so glad he’s doing better:thumb: you and your vets know him best and whatever decisions you make for him will be the best for him:thumb:
 
I may be way off here, and this may be pointless, but you could get one of those air purifier things with a hepa filter? If he lives indoors? Idk if it would help, but it keeps the air quality good - we have a Dyson fan with a purifier in and honestly it's helped me so much with various things,but you can just get a purifier on amazon don't think they're that expensive.. This may not be helpful to him at all it's just you mentioned bad air quality.

I'm glad he's feeling better :) x



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I'll certainly look into that. An air purifier may help me too. Thank you x
 
I'm pleased tht he's continuing to improve and get back to normal. I wouldn't take him, or indeed myself in a similar circumstances, to have more tests, if I considered that by doing so I might find more detailed information, but it would have no impact on treatment options or prognosis.
 
Lord H has relapsed again, despite still being on various medication :cry: He has now also developed a RTI :cry:

We will be making some difficult decisions today

:cry:
 
Oh Jane, I really hope Lord H can be helped to feel better. This must be so terribly worrying for you.

The weather and air quality have been oppressive here too. Both my family and my pets are unwell. I hope if this is indeed triggering Lord H that it will lift soon and he will improve.

Thinking of you all and sending healing vibes. xxxxxxx
 
I'm so sorry to read this :cry:

Thinking of you both and hoping that dear Lord H will improve xx

((((( hugs )))))
 
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